PERAWATAN PALIATIF KARDIOVASKULAR: PENDEKATAN PENYAKIT JANTUNG TERMINAL
Abstract
Penyakit kardiovaskular merupakan penyakit dengan morbiditas dan mortalitas tertinggi di dunia. Mortalitas dan morbiditas tersebut mempengaruhi kualitas hidup pasien hariannya dan menjelang kematiannya. Diperlukan perawatan holistik yang berguna untuk meningkatan kualitas hidup pasien dengan penyakit serius atau terminal kardiovaskular dan komplikasinya. Perawatan tersebut adalah perawatan paliatif, dimana perawatan ini multidisiplin dengan dukungan psikososial dan spiritual. Perawatan paliatif ini dibagi menjadi dua yaitu, primer dan sekunder. Perawatan paliatif primer dilakukan oleh ahli jantung, sedangkan perawatan sekunder dilakukan oleh ahli paliatif dengan tim lain. Perawatan ini dapat diterapkan pada pasien dengan penyakit jantung iskemik, penyakit katup jantung berat, gangguan irama, penyakit arteri perifer dan penyakit jantung kongenital dewasa. Penggunaan pereda nyeri dapat digunakan pada penyakit jantung iskemik, juga pengaturan ICD pada aritmia. Pada pasien dengan masalah katup, penyakit arteri perifer, maupun penyakit jantung kongenital, tindakan invasif maupun prosedur operasi perlu didiskusikan bersama dengan preferensi dari pasien. Diharapkan para ahli jantung dapat menggunakan layanan perawatan paliatif kardiovaskular untuk pasien tahap terminal kardiovaskular di kemudian hari.
References
Tsao CW, Aday AW, Almarzooq ZI, et al. Heart Disease and Stroke Statistics—2023 Update: A Report From the American Heart Association. Circulation. 2023;147(8). doi:10.1161/CIR.0000000000001123
Centers for Disease Control and Prevention. National Center for Health Statistics. National Center for Health Statistics, 1999–2020. Published 2022. Accessed April 15, 2024. https://wonder.cdc.gov/mcd-icd10.html
Kelley AS, Morrison RS. Palliative Care for the Seriously Ill. New England Journal of Medicine. 2015;373(8):747-755. doi:10.1056/NEJMra1404684
Sidebottom AC, Jorgenson A, Richards H, Kirven J, Sillah A. Inpatient Palliative Care for Patients with Acute Heart Failure: Outcomes from a Randomized Trial. J Palliat Med. 2015;18(2):134-142. doi:10.1089/jpm.2014.0192
Rogers JG, Patel CB, Mentz RJ, et al. Palliative Care in Heart Failure. J Am Coll Cardiol. 2017;70(3):331-341. doi:10.1016/j.jacc.2017.05.030
Wong FKY, Ng AYM, Lee PH, et al. Effects of a transitional palliative care model on patients with end-stage heart failure: a randomised controlled trial. Heart. 2016;102(14):1100-1108. doi:10.1136/heartjnl-2015-308638
Brännström M, Boman K. Effects of person‐centred and integrated chronic heart failure and palliative home care. PREFER : a randomized controlled study. Eur J Heart Fail. 2014;16(10):1142-1151. doi:10.1002/ejhf.151
Evangelista LS, Lombardo D, Malik S, Ballard-Hernandez J, Motie M, Liao S. Examining the Effects of an Outpatient Palliative Care Consultation on Symptom Burden, Depression, and Quality of Life in Patients With Symptomatic Heart Failure. J Card Fail. 2012;18(12):894-899. doi:10.1016/j.cardfail.2012.10.019
Ng AYM, Wong FKY. Effects of a Home-Based Palliative Heart Failure Program on Quality of Life, Symptom Burden, Satisfaction and Caregiver Burden: A Randomized Controlled Trial. J Pain Symptom Manage. 2018;55(1):1-11. doi:10.1016/j.jpainsymman.2017.07.047
Diop MS, Rudolph JL, Zimmerman KM, Richter MA, Skarf LM. Palliative Care Interventions for Patients with Heart Failure: A Systematic Review and Meta-Analysis. J Palliat Med. 2017;20(1):84-92. doi:10.1089/jpm.2016.0330
Taylor GJ, Lee DM, Baicu CF, Zile MR. Palliative Care for Advanced Heart Failure in a Department of Veterans Affairs Regional Hospice Program: Patient Selection, a Treatment Protocol, and Clinical Course. J Palliat Med. 2017;20(10):1068-1073. doi:10.1089/jpm.2017.0035
Munday D, Boyd K, Jeba J, et al. Defining primary palliative care for universal health coverage. The Lancet. 2019;394(10199):621-622. doi:10.1016/S0140-6736(19)31830-6
Quill TE, Abernethy AP. Generalist plus Specialist Palliative Care — Creating a More Sustainable Model. New England Journal of Medicine. 2013;368(13):1173-1175. doi:10.1056/NEJMp1215620
Sullivan MF, Kirkpatrick JN. Palliative cardiovascular care: The right patient at the right time. Clin Cardiol. 2020;43(2):205-212. doi:10.1002/clc.23307
Warraich HJ, Wolf SP, Mentz RJ, Rogers JG, Samsa G, Kamal AH. Characteristics and Trends Among Patients With Cardiovascular Disease Referred to Palliative Care. JAMA Netw Open. 2019;2(5):e192375. doi:10.1001/jamanetworkopen.2019.2375
Davies A, Fox K, Galassi AR, Banai S, Ylä-Herttuala S, Lüscher TF. Management of refractory angina: an update. Eur Heart J. 2021;42(3):269-283. doi:10.1093/eurheartj/ehaa820
Knuuti J, Wijns W, Saraste A, et al. 2019 ESC Guidelines for the diagnosis and management of chronic coronary syndromes. Eur Heart J. 2020;41(3):407-477. doi:10.1093/eurheartj/ehz425
Jespersen L, Abildstrøm SZ, Hvelplund A, Prescott E. Persistent angina: highly prevalent and associated with long-term anxiety, depression, low physical functioning, and quality of life in stable angina pectoris. Clinical Research in Cardiology. 2013;102(8):571-581. doi:10.1007/s00392-013-0568-z
Damluji AA, Forman DE, Wang TY, et al. Management of Acute Coronary Syndrome in the Older Adult Population: A Scientific Statement From the American Heart Association. Circulation. 2023;147(3). doi:10.1161/CIR.0000000000001112
Henry TD, Satran D, Jolicoeur EM. Treatment of refractory angina in patients not suitable for revascularization. Nat Rev Cardiol. 2014;11(2):78-95. doi:10.1038/nrcardio.2013.200
Murphy I, Sivashankar A, Gadoud A. Refractory angina is a growing challenge for palliative medicine: a systematic review of non-invasive interventions. BMJ Support Palliat Care. 2022;12(e6):e869-e881. doi:10.1136/bmjspcare-2020-002202
Tinson D. Clinical and psychological outcomes of an angina management programme. British Journal of Cardiology. Published online 2016. doi:10.5837/bjc.2016.020
Patel PA, Khan M, Yau C, Thapar S, Taylor S, Sainsbury PA. The short- and long-term impact of psychotherapy in patients with chronic, refractory angina. British Journal of Cardiology. Published online 2016. doi:10.5837/bjc.2016.019
Maqsood MH, Khan MS, Warraich HJ. Association of Palliative Care Intervention With Health Care Use, Symptom Burden and Advance Care Planning in Adults With Heart Failure and Other Noncancer Chronic Illness. J Pain Symptom Manage. 2021;62(4):828-835. doi:10.1016/j.jpainsymman.2021.02.017
Coylewright M, Palmer R, O’Neill ES, Robb JF, Fried TR. Patient‐defined goals for the treatment of severe aortic stenosis: a qualitative analysis. Health Expectations. 2016;19(5):1036-1043. doi:10.1111/hex.12393
Steiner JM, Cooper S, Kirkpatrick JN. Palliative care in end-stage valvular heart disease. Heart. 2017;103(16):1233-1237. doi:10.1136/heartjnl-2016-310538
Masoudi FM, Oetgen WJ. The NCDR ICD Registry. J Am Coll Cardiol. 2017;70(13):1673-1674. doi:10.1016/j.jacc.2017.08.021
Fudim M, Carlisle MA, Devaraj S, et al. One‐year mortality after implantable cardioverter‐defibrillator placement within the Veterans Affairs Health System. Eur J Heart Fail. 2020;22(5):859-867. doi:10.1002/ejhf.1755
Stoevelaar R, Brinkman-Stoppelenburg A, Bhagwandien RE, et al. The incidence and impact of implantable cardioverter defibrillator shocks in the last phase of life: An integrated review. European Journal of Cardiovascular Nursing. 2018;17(6):477-485. doi:10.1177/1474515118777421
Lampert R, Hayes DL, Annas GJ, et al. HRS Expert Consensus Statement on the Management of Cardiovascular Implantable Electronic Devices (CIEDs) in patients nearing end of life or requesting withdrawal of therapy. Heart Rhythm. 2010;7(7):1008-1026. doi:10.1016/j.hrthm.2010.04.033
Kramer DB, Mitchell SL, Brock DW. Deactivation of Pacemakers and Implantable Cardioverter-Defibrillators. Prog Cardiovasc Dis. 2012;55(3):290-299. doi:10.1016/j.pcad.2012.09.003
Honda Y, Mok Y, Mathews L, et al. Psychosocial factors and subsequent risk of hospitalizations with peripheral artery disease: The Atherosclerosis Risk in Communities (ARIC) Study. Atherosclerosis. 2021;329:36-43. doi:10.1016/j.atherosclerosis.2021.04.020
Yefimova M, Aslakson RA, Yang L, et al. Palliative Care and End-of-Life Outcomes Following High-risk Surgery. JAMA Surg. 2020;155(2):138. doi:10.1001/jamasurg.2019.5083
Morton C, Hayssen H, Kawaji Q, et al. Palliative Care Consultation is Associated with Decreased Rates of In-Hospital Mortality Among Patients Undergoing Major Amputation. Ann Vasc Surg. 2022;86:277-285. doi:10.1016/j.avsg.2022.05.005
Steiner JM, Dhami A, Brown CE, et al. It’s part of who I am: The impact of congenital heart disease on adult identity and life experience. International Journal of Cardiology Congenital Heart Disease. 2021;4:100146. doi:10.1016/j.ijcchd.2021.100146
Schwerzmann M, Goossens E, Gallego P, et al. Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European Association for Palliative Care (EAPC), and the International Society for Adult Congenital Heart Disease (ISACHD). Eur Heart J. 2020;41(43):4200-4210. doi:10.1093/eurheartj/ehaa614
Steiner JM, Stout K, Soine L, Kirkpatrick JN, Curtis JR. Perspectives on advance care planning and palliative care among adults with congenital heart disease. Congenit Heart Dis. 2019;14(3):403-409. doi:10.1111/chd.12735
Deng LX, Gleason LP, Khan AM, et al. Advance Care Planning in Adults with Congenital Heart Disease: A Patient Priority. Int J Cardiol. 2017;231:105-109. doi:10.1016/j.ijcard.2016.12.185
Blume ED, Kirsch R, Cousino MK, et al. Palliative Care Across the Life Span for Children With Heart Disease: A Scientific Statement From the American Heart Association. Circ Cardiovasc Qual Outcomes. 2023;16(2). doi:10.1161/HCQ.0000000000000114
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