PERSEPSI PASIEN ASPERGILOSIS PARU TERHADAP KUALITAS HIDUP DAN DUKUNGAN KELUARGA DI KOMUNITAS PEDESAAN
PERCEPTIONS OF QUALITY OF LIFE AND FAMILY SUPPORT AMONG PATIENTS WITH PULMONARY ASPERGILLOSIS IN A RURAL COMMUNITY
Abstract
Aspergilosis paru merupakan infeksi jamur kronis yang sering diabaikan di pedesaan, terutama sebagai sekuela tuberkulosis. Penelitian ini bertujuan mengeksplorasi persepsi pasien terhadap kualitas hidup dan dukungan keluarga di Kecamatan Namorambe, Sumatera Utara. Metode kualitatif fenomenologi digunakan pada 12 pasien melalui wawancara mendalam dan observasi. Hasil menunjukkan sebagian besar pasien adalah perempuan (58,3%), berusia 51–65 tahun (50%), berpendidikan rendah (75% SD ke bawah), dan memiliki riwayat TB (75%). Kualitas hidup dinilai buruk pada domain fisik (83,3%), psikologis (66,7%), hubungan sosial (50%), dan lingkungan (91,7%). Dukungan keluarga paling kurang pada aspek informatif (83,3%) dan emosional (66,7%), sedangkan dukungan instrumental relatif lebih baik. Kesimpulan: diperlukan intervensi psikoedukasi keluarga dan peningkatan akses layanan kesehatan di pedesaan.
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2. Bongomin, F., Gago, S., Oladele, R. O., & Denning, D. W. (2017). Global and multi-national prevalence of fungal diseases—Estimate precision. Journal of Fungi, 3(4), 57. https://doi.org/10.3390/jof3040057
3. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
4. Braun, V., & Clarke, V. (2021). Thematic analysis: A practical guide. SAGE Publications.
5. Carter, C., Kahai, R., Cunningham, J., Kilduff, J., Hough, N., Baxter, C., Connell, D., & Shah, A. (2024). Chronic pulmonary aspergillosis: A guide for the general physician. Clinical Medicine, 24(1), 100019. https://doi.org/10.1016/j.clinme.2024.100019
6. Creswell, J. W., & Poth, C. N. (2018). Qualitative inquiry and research design: Choosing among five approaches (4th ed.). SAGE Publications.
7. Denning, D. W., Pleuvry, A., & Cole, D. C. (2011). Global burden of chronic pulmonary aspergillosis as a sequel to pulmonary tuberculosis. Bulletin of the World Health Organization, 89(12), 864–872. https://doi.org/10.2471/BLT.11.089441
8. Denning, D. W., Cadranel, J., Beigelman-Aubry, C., Ader, F., Chakrabarti, A., Blot, S., Ullmann, A. J., Dimopoulos, G., & Lange, C. (2016). Chronic pulmonary aspergillosis: Rationale and clinical guidelines for diagnosis and management. European Respiratory Journal, 47(1), 45–68. https://doi.org/10.1183/13993003.00583-2015
9. Godet, C., Philippe, B., Laurent, F., & Cadranel, J. (2014). Chronic pulmonary aspergillosis: An update on diagnosis and treatment. Respiration, 88(2), 162–174. https://doi.org/10.1159/000362674
10. Goodridge, D., Hutchinson, S., Wilson, D., & Ross, C. (2011). Living in a rural area with advanced chronic respiratory illness: A qualitative study. Primary Care Respiratory Journal, 20, 54–58. https://doi.org/10.4104/pcrj.2010.00062
11. Jones, P. W., Quirk, F. H., Baveystock, C. M., & Littlejohns, P. (1992). A self-complete measure of health status for chronic airflow limitation: The St. George’s Respiratory Questionnaire. American Review of Respiratory Disease, 145(6), 1321–1327. https://doi.org/10.1164/ajrccm/145.6.1321
12. Kosmidis, C., & Denning, D. W. (2015). The clinical spectrum of pulmonary aspergillosis. Thorax, 70(3), 270–277. https://doi.org/10.1136/thoraxjnl-2014-206291
13. Kousha, M., Tadi, R., & Soubani, A. O. (2011). Pulmonary aspergillosis: A clinical review. European Respiratory Review, 20(121), 156–174. https://doi.org/10.1183/09059180.00001011
14. Latgé, J. P., & Chamilos, G. (2019). Aspergillus fumigatus and aspergillosis in 2019. Clinical Microbiology Reviews, 33(1), e00140-18. https://doi.org/10.1128/CMR.00140-18
15. Lowes, D., Al-Shair, K., Newton, P. J., Morris, J., Harris, C., Rautemaa-Richardson, R., & Denning, D. W. (2017). Predictors of mortality in chronic pulmonary aspergillosis. European Respiratory Journal, 49(2), 1601062. https://doi.org/10.1183/13993003.01062-2016
16. Maghrabi, F., & Denning, D. W. (2017). The management of chronic pulmonary aspergillosis: The UK National Aspergillosis Centre approach. Current Fungal Infection Reports, 11, 242–251. https://doi.org/10.1007/s12281-017-0304-7
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21. Patterson, T. F., Thompson, G. R., Denning, D. W., Fishman, J. A., Hadley, S., Herbrecht, R., Kontoyiannis, D. P., Marr, K. A., Morrison, V. A., Nguyen, M. H., Segal, B. H., Steinbach, W. J., Stevens, D. A., Walsh, T. J., Wingard, J. R., Young, J. A., & Bennett, J. E. (2016). Practice guidelines for the diagnosis and management of aspergillosis: 2016 update by the Infectious Diseases Society of America. Clinical Infectious Diseases, 63(4), e1–e60. https://doi.org/10.1093/cid/ciw326
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23. Sarafino, E. P., & Smith, T. W. (2011). Health psychology: Biopsychosocial interactions (7th ed.). John Wiley & Sons.
24. Schug, S. A., Lavand’homme, P., Barke, A., Korwisi, B., Rief, W., & Treede, R. D. (2019). The IASP classification of chronic pain for ICD-11: Chronic postsurgical or posttraumatic pain. Pain, 160(1), 45–52. https://doi.org/10.1097/j.pain.0000000000001413
25. Soleman, R. P. H., Sukartini, T., & Qona’ah, A. (2021). Patient adherence to tuberculosis treatment: A relation between family support and patient behavior. Critical Medical and Surgical Nursing Journal, 10(2), 44–49. https://doi.org/10.20473/cmsnj.v10i2.26491
26. Thoits, P. A. (2011). Mechanisms linking social ties and support to physical and mental health. Journal of Health and Social Behavior, 52(2), 145–161. https://doi.org/10.1177/0022146510395592
27. Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research: A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
28. World Health Organization. (2012). WHOQOL-BREF: Introduction, administration, scoring and generic version of the assessment. World Health Organization.
29. World Health Organization. (2022). WHO fungal priority pathogens list to guide research, development and public health action. World Health Organization.
30. World Health Organization. (2022). WHO consolidated guidelines on tuberculosis: Module 4: Treatment—Tuberculosis care and support. World Health Organization.
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2026-07-22
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